Tag: fibromyalgia

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Hang

by Isabelle Cheren7 Comments on Hang
Hang

Have you ever felt so exhausted that you really feel you could sleep forever?

That’s me right now.

I go to bed each night, sleep, wake up, work and repeat. Same thing I’ve done for many years.

Just lately though it feels like my sleep never existed and those hours in bed never happened.

Today I woke up as normal for work, had breakfast, drank my tea and started work. The difference was that exhaustion was in a whole new level and I knew I couldn’t sit there and work. It was like the brain stopped functioning and I needed to sleep.

So, for the first time in my life, I took a day off to sleep. Purely and totally just to go back to bed and rest.

I woke up again 15 minutes ago and I can honestly say that was the best thing for me.

I still feel exhausted but I feel better for it. Now what to do with the rest of my day!

Hang?????

Credits:-

Mitjana outfit from [GIULIADESIGN]at the Designer Showcase 

Reflectice eyes  from Amara Beauty

Bloodline hair from DOUX

Sweet gloss Lipstick from A R T E

Glam On eyeshadow from A R T E

Catya bento head from CATWA

Angel shape for the Catya head LizBitz

Lara mesh body Maitreya

Nora BOM skin from  Amara Beauty

 


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blogging, Virtual Worlds

This day

by Isabelle Cheren2 Comments on This day
This day

The picture doesn’t give away my story. So I’ll tell you about it.

I’m sat on the bus headed home and part of me is smiling and the other part is a little in disbelief.

Today I had a meeting and instead of walking out feeling how I thought I might. The outcome was far different.

You see weeks ago, and I do mean weeks I made the decision to apply for flexible working and to look at working from home.

It was rejected and my heart sunk.

You see I applied because my condition seems to be getting worse and not any better.

The slog to work on the bus then the walk causes me intense pain and has done quite a while. I tend not to complain because I accepted this was my lot. But add that to fog periods and exhaustion I realised. Something has to change.

You see I don’t just have Fibromyalgia. I wish it was as simple as that. I say that with jest as there is nothing simple about it.

I have Stenosis in my spine. Currently around two sections of my spine. It was found in 2014 and has been getting worse.

It has the potential to lead to very serious issues for me and I’m a little head in sand but pulling it out fast now.

I’m seeing a consultant on 23rd April who is going to look at what’s going on etc.

So working from home made sense to me as it would cut out the 1.5 hour trek to work and home again and the pain I experience as the walk from the bus is seeming to get longer and longer.

So today I had an appeal meeting and it’s been granted under a trial.

So I’m both happy and in disbelief right now.

The benefits for me about my life balance will be amazing.

Credits:-

Romina red outfit from **AnaSTyle’s** at the Designer Showcase

Atlanta rings fromKlungers at the Designer Showcase

Lark Bento nails from Livia at the Designer Showcase

Gem eyes  from Amara Beauty

Tropical eyeshadow from A R T E

Sweet gloss lipstick from A R T E

Flora  hair from Kuni at the EQUAL10 Event

Catya bento head from CATWA

Angel shape for the Catya head LizBitz

Lara mesh body Maitreya

Edie  skin in 04 from  Amara Beauty

blogging, fantasy, Life, Uncategorized, Virtual Worlds

Just waiting

by Isabelle CherenLeave a Comment on Just waiting
Just waiting

It’s been 3 days since I put in my formal request to work from home. I haven’t even had an acknowledgement.

It’s called flexible working. There are great business positives for it and I’ve addressed all the cons in the application so they’re answered before the questions arise.

However the most important reason for me is the difference it will make to my quality of life.

I would literally save 2.5 hours travelling time. I’d have control over my work environment which is the huge factor and I’d have better concentration.

Anyone who has this Fibro malarkey will know that some days you feel your age and then others you feel 100 years old. The pain in your body is real and finding your comfort spot can be hard.

I struggle with this in the office because I can not control my environment. I can’t sit with the sun on me and the window wide open. I can’t regularly move from my desk as often as I need to and most of all I cannot think because the fog becomes pretty intense.

The fog is getting worse for me. It’s such a weird experience that I still cannot fathom it.

It exists and comes over like a mist. Hangs over me for hours then all of a sudden lifts.

I can literally go from being beyond exhaustion to suddenly saying g’day.

So back to the waiting……

Credits:-

Year without rain flower dress from Entice at the Designer Showcase

Gem eyes  from Amara Beauty

Aoi Si eyeshadow from Dulce Secrets at the Designer Showcase

Oline lipstick from A R T E

Charlotte  hair from Analog Dog

Catya bento head from CATWA

Angel shape for the Catya head LizBitz

Lara mesh body Maitreya

Edie  skin in 04 from  Amara Beauty

Year Without Rain - Flowers - MAIN (1024)

blogging, fantasy, Uncategorized, Virtual Worlds

Chilling

by Isabelle CherenLeave a Comment on Chilling
Chilling

This week is an incredibly crazy week trying to get things done at work and home.

I’m currently struggling as the pain seems to be much worse than normal. Each task seems to be a lot harder to do as a result.

My spine is telling me it’s had enough.

I cannot wait till Sunday. I’ll spend it wrapped up on the sofa watching Christmas films and just giving into the chill for a change.

Giving into the chill is rare for me mainly because I often feel worse as a result. There are drugs though and I’m going to be embracing the fact that I can take them and not worry if I fall asleep etc. (Prescribed I’m referring to by the way).

This picture in the snow in a little gazebo would be lovely right now. There is however no snow where I am and a gazebo wouldn’t fit on my real balcony. However in a virtual world you can in fact be anything and do anything.

Credits:-

Baby Love coat from Entice at the Guest List till the 23rd December

Sunflower boots from Entice at the Cosmopolitan Event

There is a little ho ho hunt started at  Raindale with 10 prizes to find. Simply teleport over to Raindale and there is a sign, click on that and let the hunt begin. The Gazebo, rocking chair, lanterns, candle, floor mat with pillows and more.

Holiday Ho Ho Hunt key

Gem eyes  from Amara Beauty

Blossom eyeshadow from A R T E

Oline lipstick from A R T E

Ribbed beanie hair from Argrace

Catya bento head from CATWA

Angel shape for the Catya head LizBitz

Lara mesh body Maitreya

Edie  skin in 04 from  Amara Beauty

blogging, fantasy, Fashion, Flickr, Life, Linden Lab, Reality, second life, Virtual Worlds

More drugs

by Isabelle Cheren2 Comments on More drugs
More drugs

Yesterday I saw the doctor and it was pretty intense and she was brilliant.

Basically I’ve come away with more tests and a referral to a rheumatoid specialist. Potentially they need to rule out that they haven’t labelled me with Fibro when I could have something else going on.

Ive been given a huge drug change which after looking at the side effects potential scares the holy crap out of me.

Most people know I don’t like taking medication.

I have a strong belief that you may help one condition but then create another because of side effects.

So I’m a little daunted by a 60 mg dose of Duloxetine. It’s a huge jump from what I’m taking now and one of the side effects, SWEATING!!! Oh good god. I think I’ll hold off a few days at any rate. I need to get one drug out my system as having both in could lead to serotonin syndrome.

Yeah don’t ask !

Remind me why I’m doing this again?

Video below of the HUD’s!!!

Video:-

Credits:-

Lux’Leather pants from Bijou

Pip top from Bijou

Garden of Roses necklace and bracelets from ::OOPS!:: at the Dubai Event

Borealis eyes from A R T E at the SOS 2018

Fighting dance bento pose from BodyLanguage

Blossom eyeshadow from A R T E

Sweet gloss lipstick from A R T E

Yayoi  hair from Argrace

Catya bento head from CATWA

Angel shape for the Catya head LizBitz

Lara mesh body Maitreya

Edie  skin in 04 from  Amara Beauty

blogging, Fashion, Life, second life, Virtual Worlds

A Fibro flare up.

by Isabelle Cheren2 Comments on A Fibro flare up.
A Fibro flare up.

Hump day today. Not only is it Wednesday but I also have the hump.

An expression meaning I’m not in a great mood.

I’ve woken up on the wrong side of tired and feeling prickly today. Never a good combination as I know the day will drag.

By prickly I don’t mean I’ve got my shark head on, I mean I’m in a lot of physical pain as I have had a flare up for the past 2 weeks.

It’s hard to describe pain when having a flare because if you ask me where does it hurt? My answer is everywhere.

How do you feel? I don’t know, agitated, restless, old, like I’m walking against a water tide going against me. I hear you, but you’re a thousand miles away.

There was a time I never felt like this and every day was clear and I had a thousand times over the energy of a 25 year old.

6 years ago that changed. Now those moments come and go fleetingly and the reality is this.

But do I let that rule me? No. Because the minute that it does, then I may as well give up. I have no intention of doing that.

So to all my fellow Fibro sufferers. We may walk against a sea of water going in the wrong direction, but we are a lot stronger for it.

Credits:-

Bettie Corset from :::Suki::: at the Designer Showcase

DWL jeans from Blueberry

Gem eyes  from Amara Beauty

Tropical eyeshadow from A R T E

Sweet gloss lipstick from A R T E

Genesis hair from Stealthic

Catya bento head from CATWA

Angel shape for the Catya head LizBitz

Lara mesh body Maitreya

Edie  skin in 04 from  Amara Beauty

He  is that fur fella  Draki

blogging, Fashion, Firestorm Viewer, Life, Quirky habits, Reality, second life, second life art, second life body, second life fashion, Thoughts, Uncategorized, Unreality, virtual life, virtual reality, Virtual Worlds, You tube

Coffee again and Fibromyalgia

by Isabelle CherenLeave a Comment on Coffee again and Fibromyalgia
Coffee again and Fibromyalgia

Todays Coffee with Isa is one I was asked to talk about and took me a number of times to sit down and talk about without getting all emotional and blubby.

I still managed to do that but I spare you those visuals by overlaying my pixel woman.

It is a condition I do have and was diagnosed nearly 4 years ago ish. Well early 2015 to be exact but I had been living with and flaring up over and over since August 2012 when it came out.

We all know at least one person with this condition, that has been diagnosed or will soon be diagnosed. Its a condition that you cant always see by looking at a person, sometimes you can.

I have included information for various sources of advice on this condition  at the bottom of this blog under the credits for those who don’t understand the condition and want to understand it more.

I have tried to include as many as that I feel for me personally are relevant and those I’m currently looking at taking into account the larger of my reader bases which is UK, USA and Australia.

Video:-

Credits:-

Jazlyn dress from LIZIAAH now at the Designer Showcase

Audrey Jewellery from Moondance Boutique at the Designer Showcase

Catya bento head from CATWA

Sweet gloss and Tropical eyeshadow from A R T E

Hair from Sintilika

Angel shape for the Catya head LizBitz

Lara mesh body Maitreya

Christy dark skin Lara Hurley

Shot on location at Whimberley and my living room

Sources of Fibromyalgia information :-

NHS England  

Arhtritus research UK

Fibromyalgia Action group

Emerge Australia  and  Health Direct Australia

CDC United States and NFA United States

Ayla Pants showed me an interesting site Im currently looking at DR Ginevra Liptan who is United States based.

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She pouts.

by Isabelle CherenLeave a Comment on She pouts.

It’s Thursday and I’m as always on my bus ride to work. 

I’m due to spend most of my day in union related meetings. I’ve decided this cannot possibly be, as I’m far from being really awake today.

I’m actually rarely that alert anyhow due to a low B12 deficiency which can affect memory as well as the zing of being awake.

I’ve been known to fall asleep while awake. Go figure in that.

The worst experience I had of this was when I printed off a form to send out in the post. I pressed 2 to be sent. Well when I got to the printer and released for printing, it just kept coming.

Seemingly I had in fact pressed 200!

What’s the problem with that , it’s only work, you ask?

Well our dept is charged 2p for every print and then as individuals our print volume is monitored. So you can imagine Liz printing 200 pages would beggar many questions.

B12 deficiency is something I had never given any thought to. It can’t be resolved by a vitamin pill from the chemist. 

I had to start a course of injections for a number of weeks every few days to raise my levels, then once s month, and now every three months for the rest of my life.

I’m expecting dementia because my understanding is that this can be related.

I mean, before they realised what was going on, I had suddenly one day forgotten how to put a duvet in its cover to make a bed. I stood crying for ages because I wondered why I couldn’t work it out . I am fine now, but that actually scared the hell out of me.  That was just over a year ago and now I remember to put my knickers on in the morning and make sure I catch the right bus. Although I’ve been prone to putting odd shoes on. 

I suffer both low B12 and Fibromyalgia. The two together are a beatch, but I don’t complain as life could be much much worse and I’m truly thankful I don’t have too much to whine about.

Pleasure to share and for all those with same conditions. I feel your pain, literally.
Credits:- 

Bibi head by CATWA

Maitreya Lara mesh body

Wasabi pills hair

Lara Hurley Christy Skin

Eyes are CATWA

Outfit by Blueberry

Links later…,